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Dr Jon Graftdyk OAM

Dr Jon Graftdyk OAM was recognised for service to the community through cancer support groups. Particularly his support for people living with ALK+ lung cancer, through his role as Chairperson of ALK Positive Australia.

Following his own diagnosis with stage IV lung cancer, Jon became deeply involved in patient advocacy to help improve outcomes for others facing the same disease:

“Living with cancer has shaped the way I approach work. It gives you a very direct understanding of vulnerability, uncertainty, and the importance of time. It also changes how you think about compassion and practical support.”

Jon’s work includes supporting patients and families navigating complex treatment pathways, contributing to national medicine access discussions, advocating for equitable PBS access to targeted therapies, engaging with clinicians and researchers, and helping build a strong, connected community for people affected by ALK+ lung cancer.

He says, “a significant part of the work has involved trying to bridge the gap between policy, medicine and lived experiences,” explaining patients often understand the practical realities of cancer care in ways that are difficult to capture through clinical data alone. 

Jon shares two important reflections regarding his work. First, “that cancer advocacy is ultimately about people, not just treatments or statistics. Behind every policy decision, clinical trial or funding recommendation is a person trying to live their life, care for their family, and maintain hope in extremely difficult circumstances. 

Second, “that modern cancer care is changing rapidly. Targeted therapies and precision medicine are transforming outcomes for many patients, but equitable access to those advances still matters enormously,” noting that “advocacy plays an important role in making sure patients are not left behind simply because a system was not designed with their circumstances in mind.” 

When asked how care, kindness and respect are important in his work, Jon’s answer is simple: “Making sure people feel heard during some of the most difficult moments of their lives.” 

He explains that many patients are overwhelmed after diagnosis and are trying to process complex medical information while dealing with fear and uncertainty. Support is unique to the patient: “Sometimes practical support is important … other times, it is simply taking time to listen and acknowledge what they are going through.

“Treating people with dignity, honesty and empathy can make an enormous difference, particularly when someone feels isolated or frightened.”

Through peer support, patient education, advocacy initiatives and community engagement, Jon’s work has helped create stronger connections between patients, carers, clinicians, and researchers. 

Jon was awarded a Medal of the Order of Australia in The King’s Birthday 2026 Honours.